Communication is so fundamental to the way we live that most of us take it for granted…for example, without it how would you…
- Find your way to the right meeting room in an unfamiliar office?
· Order what you want to eat at a restaurant?
· Express that you don’t want/like something (e.g. the room is too hot)?
And if you couldn’t tell people these things, despite knowing what you wanted, how frustrated would you be?
Communication is a life skill that people continue to develop – and something that for Evie, particularly with speech, is not something that comes naturally to her.
However, following the last three week intensive therapy course, Evie is now pointing and doing some basic signing.
This is a transformative milestone for us as Evie can now make choices for herself. She can sign ‘food’ and then point to what food she wants (normally Weetabix, bananas or ice creams) and she can point to the garden swing, so we know what she likes doing in her down time. She can tell us if she wants to be held by mummy or daddy.
And without the fundraising efforts of supporters of Evie, I believe she wouldn’t be at the stage of development she now is.
We want Evie to continue to progress to live as normal a life as possible, which is why we are continuing to fundraise for another batch of intensive therapy later this year.
A few special thanks this week.
- Kim Donkesley has completed the Harrogate 10k and raised over £450. What a fantastic achievement – thank you.
- The team at Boxclever Research have made a substantial donation to Evie’s Everest appeal, we are really overwhelmed by the support and can’t thank you all enough.
A massive thanks to recent fundraisers for Evie’s Everest Appeal.
Tom Stevens – ran 50 miles round the north downs (yes, 50 – one marathon was not enough for Tom) and has raised over £1,100. We can’t thank you enough Tom.
Helen Sier, Hannah and Sharon’s Canal Trekked 17 miles today and raised over £500 – well done all and thanks so much for your support Helen, what would we do without friends like you?
Rachel Lerner and Steve Barron – swam the height of Everest, 8848 meters (70 laps per day for 5 days starting at 6am). Huge effort and Steve thanks so much for providing Rachel with even more motivation to complete the challenge.
To continue to help Evie climbing her Everest, we are going to climb the Everest of Yorkshire; the 3 Yorkshire Peaks on 17th September!
The 3 peaks consist of climbing Pen-y-ghent, Whernside and Ingleborough covering a distance of 26.1 miles with nearly 5,249 ft of ascent and descent.
A challenge that many walkers aim for when undertaking the walk is to complete the walk in under 12 hours, though as Alfred Wainwright said “Some participants have chosen to regard the walk as a race, and this is to be greatly regretted, walking is a pleasure to be enjoyed in comfort!
We would love it if you could get involved either in taking part in the walk and fundraising or by supporting others who are taking part by donating via the links on this site.
We have at least 10 people taking part so far, and will have a support team in place on the day of the walk thanks to the Knight family.
So if you would like to take part and are free on the 17th September please get in touch on firstname.lastname@example.org
Its only been a few months since setting up Evie’s Tree Of Hope campaign to help her walk and talk and we have been truly overwhelmed by the support, kindness and generosity of friends and family, past and present. For Rachel and I, it has provided us with more hope that we can help Evie in the knowledge that we have such a fantastic team behind us – so thanks!
In terms of fundraising we have already raised over £8,000 which we will use to pay for the 3 week intensive therapy bill that Evie is currently undertaking.
Evie has also been making great progress, she is now crawling properly and is building her confidence in and outside of the house – its been fantastic to see get some independence and is helping our backs somewhat too!
As a result of the therapy, Evie has become noticeably more interactive, her balance and co-ordination have improved considerably and she has established a couple of Makaton signs so far! And we have another week to go of this course.
She is now going into the toddler room at nursery a few days a week and has 10 hours 1-2-1 time which is great as means she can learn from children closer to her age – and she is even sleeping on the toddler beds!
We have also had some tough medical appointments where we continue to have no answers and Evie will now be included in some further scientific tests, both locally within Leeds genetics/neurology areas and a national study to try and establish the root cause of Evie’s hypo-myelinating brain condition. Evie has already defied medical science with her development so far and we are hoping and praying that she will continue to do so.